Janet Hieshetter has served as Executive Director of the Dystonia Medical Research Foundation (DMRF) since 2004. Janet has over 20 years experience in association and healthcare-related settings. Previous positions include Director of Community Resource Development at TRILOGY, Inc. and Senior Director/Interim Executive Director of the National Osteoporosis Foundation. She earned a BA in Health Sciences from Kalamazoo College in Kalamazoo, Michigan.
Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia. Because dystonia hits so close to home for our directors and volunteers, the DMRF leadership is motivated by an unrelenting drive to find a cure and an unwavering commitment to serving people affected by dystonia.