Wednesday, July 22, 2009

Dystonia Twitter Awareness Day

Dystonia Twitter Awareness Day

Calling all Twitter users to come out
and tweet about #dystonia today, July 22, 2009.

We are trying to create a #dystonia Twitter Trend
to raise awareness and we need at least 1,000 tweets about #dystonia.

Why the # before the word dystonia?
It makes it easier to search for posts about dystonia.

Join us today and tweet about #dystonia.

Dystonia Twitter Awareness Day

Friday, July 10, 2009

John H. Menkes Children and Family Symposium

Everyone experiences moments in their lives that they will never forget, people that they will never forget. We carry these moments and people with us, learning what it means to become part of something bigger. For many in the dystonia community the John H. Menkes Children & Family Symposium represents just that – the chance to become a more integral part of the DMRF family.

We invite you to come out and take part in this year’s Symposium, which is scheduled for Friday, August 14th through August 16th in Chicago. Visit for more information and to register.