Monday, June 8, 2009
Thank you to all of you who created new awareness last week. Your efforts and your sharing personal stories – is helping to make a difference. Thank you all so much. We are reaching people and you just never know when you will encounter someone else who is aware or who is seeking information. Last week, while making travel arrangements for an upcoming conference, I was speaking with a toll-free operator who wanted to send the confirmation to my email address. When I gave it to her, she paused and said – “My daughter has dystonia and the DMRF website has been so helpful to our family. Thank you.” She went on to tell me the good news of how her daughter is doing (much better) and how grateful she was to have the Foundation’s site as a resource. The personal stories combined with accurate, educational information is what is helpful in creating positive awareness. National Dystonia Awareness Week is over but the need to awareness continues. Keep up the good work and please let us know if we can do anything to support your local efforts.