Monday, June 1, 2009

National Dystonia Awareness Week

For more than 30 years, the Dystonia Medical Research Foundation has worked to wipe out dystonia. Our efforts began long before most people, including healthcare professionals, really knew or cared about dystonia. The progress of the dystonia community is directly attributable to those of you willing to share your stories and your insights. Whether it is on television or in a written publication in a large city or a small community, or perhaps as importantly by talking with someone you know or a complete stranger in the checkout line at a grocery store – you are making a difference. Awareness is a process – every piece important, every person’s story contributing to our goal of helping others understand what dystonia is and how we intend to fight it.

This is National Dystonia Awareness Week. We encourage you to continue to tell your stories and then let us know of your activities. Let’s share our awareness experiences and successes with each other. We can’t wait to hear of your activities this week. Each and every interaction is important for together we are making a difference.

Visit or email us at and share your story.

Thank you!

1 comment:

  1. Excellent post. My review is:
    Lindsay Rosenwald Lindsay Rosenwald – Director Of Republican Jewish Coalition