Friday, January 17, 2014

Celebrating a Success for Research

Great news! The appropriations bill passed by Congress this week included dystonia on the list of eligible conditions for the DOD Peer Review Medical Research Program AND this program received an increase of $150 million over the FY13 level. This increase in funding will allow for more research to be funded and/or for research to be funded at higher levels

So many of you helped to make this happen. It demonstrates the power of advocacy.  Many of you have been working tirelessly to have dystonia included. THANK YOU!

We also want to recognize and express our appreciation to the late Honorable Bill Young, Congressman from Florida.  Congressman Young had been a champion of dystonia, and his support of the addition of dystonia to the PRMRP list was so important this year.

This is a wonderful example of a collaborative effort. The DMRF is proud to work with the other members of the Dystonia Advocacy Network (DAN) on important efforts such as this that identify research funding opportunities for our talented and dedicated dystonia researchers. DAN members, the Benign Essential Blepharospasm Research Foundation, DySTonia, Inc., the National Spasmodic Dysphonia Association, the National Spasmodic Torticollis Association, and the DMRF, are pleased to be working on plans for Advocacy Day this year - mark your calendars for April 8- 9 in Washington, DC.  More information on how you can register will be announced in the coming weeks.

In the meanwhile, thank you again for helping the dystonia community reach this important achievement!

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