Great news! The appropriations bill passed by Congress this
week included dystonia on the list of eligible conditions for the DOD Peer
Review Medical Research Program AND this program received an increase of $150
million over the FY13 level. This increase in funding will allow for more
research to be funded and/or for research to be funded at higher levels
So many of you helped to make this happen. It demonstrates
the power of advocacy. Many of you have
been working tirelessly to have dystonia included. THANK YOU!
We also want to recognize and express our appreciation to
the late Honorable Bill Young, Congressman from Florida. Congressman Young had been a champion of
dystonia, and his support of the addition of dystonia to the PRMRP list was so
important this year.
This is a wonderful example of a collaborative effort. The
DMRF is proud to work with the other members of the Dystonia Advocacy Network
(DAN) on important efforts such as this that identify research funding
opportunities for our talented and dedicated dystonia researchers. DAN members,
the Benign Essential Blepharospasm Research Foundation, DySTonia, Inc., the
National Spasmodic Dysphonia Association, the National Spasmodic Torticollis
Association, and the DMRF, are pleased to be working on plans for Advocacy Day this year - mark your calendars for April 8- 9 in Washington, DC. More information on how you can register will
be announced in the coming weeks.
In the meanwhile, thank you again for helping the dystonia
community reach this important achievement!
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