The 4th of July is our national holiday that commemorates
our independence, giving generations that followed all the freedoms afforded us
through this democracy. As we plan for
the holiday, it is so important to remember that those who are affected by
dystonia do not have all freedoms others enjoy – they have been robbed of the
basic freedom to move, to control their bodies.
Like the signers of the Declaration of Independence, we too are fighting
for a revolution: battling this disorder in order to restore the freedom to
move. We will not stop until we can
claim victory! Many are engaged in this
battle. Those who live every day with
the pain and limitations dystonia brings are joined by many allies: researchers
across the globe who are working every day to better understand the mechanism
of dystonia so we can stop it at its origins and to find treatments, families
who are working so hard to make life better for their loved ones, and friends
who would do anything to advance our cause.
On this 4th of July, we salute you all for sharing your stories to raise
awareness of dystonia, to everyone who is a source of comfort and support for
persons living with dystonia, and finally to the researchers who are getting us
closer to a new independence. Enjoy your
holiday and never forget – our work continues.
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