Thursday, May 2, 2013

Gratitude for Our Dystonia Advocates

Many thanks to the nearly 100 advocates who traveled to Washington, DC this week to make sure dystonia remains a priority to our legislators. Words cannot express the gratitude we have for all of you – for sharing your stories, navigating the maze-like halls of the Congressional office buildings, and making sure key Congressional staff persons know about dystonia and how they can help. The DMRF is proud to be a part of the Dystonia Advocacy Network, joining with the Benign Essential Blepharospasm Research Foundation, the National Spasmodic Dysphonia Association, the National Spasmodic Torticollis Association, and ST/Dystonia in hosting this event, but just as importantly, working throughout the year to keep dystonia on the minds of our Congressional leaders.

Congratulations to our Douglas Kramer Advocacy Award recipients, pictured below. From left to right, we applaud Melissa Phelps, Nicole Dean, and Allison London.. We look forward to working with these dedicated, young advocates in continuing to push the dystonia legislative agenda forward.

A special thank you to all of our advocates for your work these past few days. Great job, everyone!

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