Tuesday, June 5, 2012

Dystonia Awareness Week, June 3-9, 2012

June 3-9, 2012 is Dystonia Awareness Week. Although promoting dystonia awareness is something the DMRF is devoted to doing year round, this week represents a special effort to rally all of us in the dystonia community to combine our efforts for maximum reach.

This year, the DMRF is using Dystonia Awareness Week to launch the Face2Face campaign. We’re encouraging individuals who have been impacted by dystonia to do what many of you already do: to share your story with the people in your everyday lives.  We encourage you to take a moment to educate your neighbors, acquaintances, friends at the dog park, wait staff at your favorite restaurant, tellers at the bank. The DMRF can provide simple materials to support you in this effort:  http://www.dystonia-foundation.org/face2face

Your dystonia story is a powerful instrument for awareness. Who can predict the lives you may change for the better by sharing your experiences and opening up about your or your loved one’s diagnosis?

Amy Behar and Silas Courson of Dallas used a backstage visit at a Flaming Lips concert to educate members of the band on dystonia. Val and Ernie Inman, leaders of the Tampa Bay Dystonia Support Group, created a “What is Dystonia?” QR code to help inform the tech savvy among us. We are impressed by the creativity of our volunteers to get the word out and educate the public about dystonia.

Please update us on your awareness efforts by joining a special Face2Face group on Facebook and sharing how you are promoting awareness: https://www.facebook.com/groups/face2facedmrf/ Don‘t be modest – we’d love to hear from you!

Thank you for your support. We appreciate each and every one of you.

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