Thursday, September 10, 2009

Insurance Survey Update

We want to thank everyone who participated in the insurance survey last month. We very much appreciate the time and thought you put into your responses and we have over 900 people take time to help us identify the insurance issues facing the dystonia community. Thank you all! We will let you what we found and our plan for addressing the issues in the near future.

I want to thank Oxana Zabelina for all of her work in creating and implementing the survey and the issues facing those who are fighting dystonia. Oxana, a fighter herself, has returned to the University of Massachusetts, and has resumed her studies there. We wish her every success and are grateful to her for helping us make this happen.

We also want to thank our sister organizations that worked to refine the survey and promote participation. NSDA, BEBRF, NSTA and DySTonia, Inc. were great and we are proud to work in partnership with them on activities that will help all who suffer from dystonia.

Thank you everyone!

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